I was recently asked if I would like to take part in a campaign to raise awareness of ‘Alfie’s Story’ and the amazing work that Alder Hey Children’s Hospital is responsible for. Before I had even read any of Alfie’s story I knew I wanted to be involved. My family knows all too well of the amazing work Alder Hey Children’s Hospital does.
My brother was born very prematurely, at 29 weeks gestation, and weighed in at only 1lb 7oz! As a result of this he was very poorly. He spent the first few months of his life in hospital and was in and out for years afterwards. If it wasn’t for the fantastic care and treatment he received then, he may not have been a fighting fit 20 year old now.
Alder Hey is a Children’s Hospital based in the West Derby area of Liverpool, five minutes from the M62. Every year the hospital cares for over 275,000 patients and their families. The hospital is:
- A Centre of Excellence for cancer, as well as spinal, heart and brain conditions
- A Department of Health Centre for Head and Face Surgery
- A Centre of Excellence for Muscular Dystrophy and the first UK Centre of Excellence for Childhood Lupus
- One of four national centres for childhood epilepsy surgery, a joint service with the Royal Manchester Children’s Hospital
- A designated Children’s Major Trauma Centre
- Europe’s first intra-operative 3-T MRI scanner which is a pioneering technology for neurosurgery, reducing repeat operations in 90% of cases
- A World Health Organisation accredited Health Promoting Hospital
The hospital is supported by the Alder Hey Children’s Charity which aims to raise vital funds for many different things including:
- Lifesaving equipment
- Parent beds
- Bedside TVs for patients
- Specialist medical cardiac equipment
- Research projects
Alfie is a little boy who has severe asthma. He has volunteered to take part in one of the hospitals research projects to try to help people with a condition similar to his own.
“On average there are three children with asthma in every classroom in the UK. Many people underestimate how serious the condition is, especially for those who live with severe asthma. Thanks to leading research at Alder Hey, new ways to the help the condition are in the pipeline.”
Ten year old Alfred has lived with severe asthma since birth and has recently begun a research study at Alder Hey Children’s Hospital to look at ways to help the condition. Alfred’s treatment includes permanent steroids, prescribed the highest level of Seretide and taking both Montelukast and Theophylline tablets in addition to the injections which are given as part of the study. There are many triggers that set off his asthma, including all pets, grass being cut and his chest is often tight at night. Alfred in on the Autistic Spectrum and in addition to the severe Asthma, he has Esophagitis – a reflux condition which means he’s on even more tablets and is also tube fed. He is a chatty and clever young man and he loves reading and his dinosaurs!
By taking part in the research study Alfie is hoping to find a solution to help his condition and to try to improve his quality of life. He also hopes that by taking part he will help kids like himself in the future.
What an incredible little boy Alfie is!
If you would like to support the work of the charity like Alfie, there are many ways you can get involved:
- Fundraising events such as sky diving and charity runs
- Buying charity gifts online
- Monetary donations
- Adopting an Alder Hey Roost Creature
- Playing the Alder Hey Lottery
- Gifts in memory
To find out more or to make a donation to the charity please visit the following link to do so:
Thanks for reading,
You can also find me blogging at Serenely Sam